1. Hi Jennifer,

    I recently read your blog about celiac disease and you. I have recently been diagnosed in March, 2009, and since then my health is deitorating. I am not sure what to do anymore. I have seen a nutrionist, they are of no help, and were very expensive, and my physician is not sure what else we can do.

    I just want to educate and feel better so I can educate and help other people with this disease, as this is very serious.

    Can you help me, I physically, mentally feel awful, and not sure what else to do


    Pia Marie Lee
    Bel Air, MD

    • So terribly sorry. A few thoughts come to mind….
      Are you sure your diet is 100% gluten-free? Can you find a physician who is willing to probe deeper (do complete screen, check blood nutrient levels, thyroid levels etc.) and look for other causes?
      Try to spend some time at the website, it is an absolute wealth of information. I think there’s even a feature that allows you to search for top physicians that understand celiac disease and all its complexities.
      May God grant you wisdom,

  2. Hi Jennifer,
    I, too, suffer from migraines and am finally coming to the resolution that this is a chronic disease. I have been fighting it and trying every magic cure. I have been with an osteopath, however, and have not made it to the neurologist yet. I do not want to take daily meds. for migraines…..I have been following dr. Bucholz 123 program for a few months and had a little reprieve. I am not doing well with the food restriction. I find it very depressing……
    I was wondering if you found great success with the hemp oil. I read your post on the celiac site. I was interested in the amount etc…..
    I was wondering if you found dr. bucholz program to be the answer?
    Hope to hear from you.

    • Hello,
      Sorry for my slow response. I had quite a bit of relief from the 1.2.3 program, however, I still suffer with the hormonal/cyclical migraines. The hemp oil, like other things, worked for a while, but no longer works. I am not doing as well on the 1.2.3 program, now, and wonder if it is because over time I have added back 1-3 cups of decaf tea/day. The author says to have ZERO caffeine, and decaf tea has tiny amounts. I have such an incredibly restricted diet (no gluten, dairy, sugar, + the suggested list in the book) anyway, and the tea seems to be the one thing I just can’t give up. Plus, I’m teaching all day again, and it soothes my throat. The herbal teas just don’t hold a candle to a good cup of British Blend decaf 🙂 I guess the only way to tell is to cut it out for a few weeks and see how I do.
      One amazing result of the 1.2.3 program, is that if I do get a migraine that feels like it will kill me, a 1/2 dose of Excedrin Migraine (which has caffeine!) takes it away and I can stay at work! I only allow myself a max of 2 such doses/month, because otherwise I know I’ll get back in the rebound trap. I think being off 90% caffeine makes that med so much more effective – the sudden jolt of caffeine with the aspirin and acetominophen does the trick. Of course, the book says to never ever use that med, but if I’m 30 minutes drive from home with a classroom full of teenagers, I’m taking it 🙂
      Guess my New Years Resolution needs to be ZERO caffeine. I’ll cut out the decaf and then see if that is the culprit and I’ll let you know.
      May you have a migraine-free new year…

  3. I have stumbled acrossed the birth control patch as a very useful tool in the significant reduction of my migraines. At one point, I was having a migraine almost every day, and while trying to “cure” a completely different ailment I found that wearing the patch all the time (4 weeks, not just 3, 24/7/365) I am down to about one migraine per week. The amount and continuous release of the patch differs from that of the pill greatly. So, if you’ve tried the pill in the past, you may want to ask to try the patch for a while. I am now working on diet and supplements to decrease the remaining migraines.

  4. Dear Jennifer,
    The added fiber has inulin. This is the hidden product that caused your bloating and cramps. I researched the “added fiber” words on another website. I also got a letter from Polaner and they were sorry that I could not buy their product anymore. They are not interested in us. only money. I too joined the ranks of people that said that fiber should come from real food and not additives.
    Dorothy Rognsvoog

  5. Wow! Your blog has been such an encouragment!! I just recently got diagnosed with celiac disease and the doctors told me that I am one of the worst cases. I have always had a history of migraines almost every day and in the past 2 years depression and anxiety. I read your article on and am getting some b6 going right away, I think that really may be the reason for my anxiety. You really touched my heart and it is nice to know I am not alone. As a quick question… what would be best out of the 4 supplements to start based on where I am at?

  6. Dear Jennifer,

    I saw a comment you made on a recipe for pumpkin bread. You said that it is not possible to come up with a pumpkin bread that is gluten-dairy-sugar free and call it pie. I would have thought so too unitl a few months ago. I was able to adapt a raw pie crust recipe with a adapted pumpkin pudding recipe. It turned out to be gluten and sugar free pumpkin pie that is wonderful. I have not experimented with dairy free yet.

    1 c. almond flour
    1 c. dates
    1/2 stick melted butter
    Cinnamon, Ginger, Nutmeg, Allspice to taste

    Preheat oven to 350 degrees F. Grease the bottom of a round springform pan. Put the almond flour, the dates, and the spices into a food processor and mix until the dates are completely broken up. It will look like coarse meal. Add the melted butter and mix until it is a very wet looking dough. Put the dough in the springform pan and evenly pat the dough across the whole bottom of the pan.

    3 eggs, slightly beaten
    3 packets stevia
    1/2 tsp. salt
    Cinnamon, Ginger, Nutmeg, Allspice to taste
    1 15 oz. can pumpkin
    1 can evaporated milk

    Combine eggs, stevia, salt, and spices. Beat well. Blend in pumpkin and evaporated milk. I mix it all by hand. Pour the filling on the unbaked crust. Bake for 40 minutes or until knife, inserted in center, comes out clean. The crust does have a tendency to burn so do not overbake the pie. Once it is done, let it sit on the counter until cool. Let it sit in the fridge for 24 hours prior to cutting or eating. It holds together very well after 24 hours in the fridge.

    This pie is drooled over for the 24 hours in the fridge and rarely lasts longer than a day or two after that!

    Also, I too suffer with migranes. I went to a gluten free, low carb diet. When I went low carb, my migranes got much better. I use almond flour and tapioca flour in my baking and limit how much of it I eat.

    I hope it helps! I know what it is like to have migraines all the time! Not fun!


    • Dear Anna,
      Thanks so much for posting this. I will have to give it a try. My migraines, which had been better, have ramped up in the last 2 weeks – maybe I should try low carb. You know as well as I do that an already limited diet makes cutting out more items even more difficult! I also cannot eat tapioca, but I could probably eat almond flour. What types of breakfast foods are you eating?
      Have a lovely weekend,

      • I have started making my own larabars with dates, almonds, and chocolate chips. I make others with added coconut and cocoa nibs. The cocoa nibs help with the headaches too.

        They are really easy to make and a lot cheaper to make myself!

        Hope the headaches are getting better!


  7. Jennifer-

    I just read your article on migraines and celiac disease. I have suffered from menstrual migraines for 20 years and am have a doctors appt next week to see about if I have celiac disease. My migraines would completely disappear during pregnancy and nursing. I went to many drs and tried many medications. I have taken seasonique birth control for the past 8 years and it has helped 80%. (Other birth control medication didn’t help). Just a suggestion – I don’t know if it would help you but it may be worth a try.

    Susan – Texas A&M Class of ’93

    • Dear Susan,
      I was at Texas A&M as a grad student from 1999-2002:) Some of the friendliest people on earth live in Texas:)
      I will keep the Seasonique in mind. My migraines did improve dramatically after going on bioidentical progesterone. However, I have had a string of them these last 2 weeks and am not sure what has happened.
      I hope your dr. appointment goes well. Remember, you may test negative for celiac disease and still be gluten intolerant. So, if the tests come back negative and you still feel that gluten is your culprit, you could go on a 2-week gluten-free trial.
      Have a lovely healthy weekend and thanks for commenting,

  8. Hi Jennifer, I tried to email you at the contact email shown, but it has bounced back. I want to ask if I can use one of your images in a post about Abaco’s Hole-in-the-Wall, now sadly blasted away by Hurricane Sandy. You have a great photo of the arch, and beyond it, the tip of Abaco – now a separate island… All the best from Rolling Harbour

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